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From the Wires
From Pain to Unexpected Fame: One Woman's Journey to Know Fibro
- Martha Beck and Leading Experts Join Together to Help People Living with Fibromyalgia -
By: PR Newswire
Oct. 27, 2008 08:30 AM
Along the way, Beck developed coping skills that helped her manage her fibromyalgia while achieving her personal goals. She earned a Ph.D. in sociology, became a mother and an author, and launched a successful career as a life coach with regular appearances on "The Oprah Winfrey Show." In an effort to help the 5 million Americans with fibromyalgia(1) play an active role in the management of their disorder, Beck is, for the first time, publicly sharing her personal journey by spearheading Know Fibro. This national initiative, co-sponsored by the National Fibromyalgia Association (NFA) and Eli Lilly and Company (NYSE: LLY), provides comprehensive fibromyalgia information, symptom management tools, practical tips, and an interactive Web site, www.KnowFibro.com . "When I was diagnosed, I was eager to learn how I could manage my symptoms, but I found there was little credible information available. Unfortunately, that story may sound all too familiar to those living with fibromyalgia," said Beck. "I was forced to create my own coping techniques that helped me take control of my fibromyalgia. Now, I look forward to sharing my experience with fibromyalgia and my life coaching tips to help others on their journey to Know Fibro." Know Fibro advocates a comprehensive care plan that may include education, lifestyle changes, and medication. Although there is no cure for fibromyalgia, many experts believe this approach is a helpful way to manage the disorder.(2) Only a health care provider can diagnose fibromyalgia. Therefore it is important for people to discuss their symptoms with a health care provider. "I have been treating people with fibromyalgia for 20 years, and when
patients learn about the disorder and what types of things they can do
themselves to make it better, this often greatly improves their symptoms,"
said Clauw, professor of anesthesiology and medicine at the By logging on to www.KnowFibro.com , visitors will have access to: -- Get to Know Fibro -- A downloadable book that features -- FibroGuide -- An interactive symptom management program that can help people with fibromyalgia learn ways to manage the disorder. The customizable program is designed to meet the individual needs of people with fibromyalgia and can show them ways to help manage many of the symptoms so they may be able to do more of the things they want to do. "I have experienced firsthand how the pain of fibromyalgia can affect even
the most simple activities of daily life, like spending quality time with my
family," said To learn more about Know Fibro, please visit: www.KnowFibro.com . About Fibromyalgia Fibromyalgia is a chronic pain disorder estimated to affect 2 percent of the U.S. population, or approximately 5 million people.(1) Women are more likely to be diagnosed with fibromyalgia, but men also develop the disorder.(3) While no two people experience fibromyalgia in the same way, common symptoms include widespread chronic pain and tenderness, fatigue,(4) problems with memory, concentration or disorganized thinking,(5) emotional changes(6)and sleep problems.(4) While the causes of fibromyalgia remain unknown, some experts believe it is due to some combination of changes in brain and spinal cord chemistry(2), genetics(7)and stress(8). About About the National Fibromyalgia Association The National Fibromyalgia Association (NFA) is a nonprofit [501(c)(3)] organization whose mission is to develop and execute programs dedicated to improving the quality of life for people with fibromyalgia. The NFA concentrates on patient support services, awareness outreach, physician education and research. The NFA produces informational materials, hosts a patient Web site ( www.FMaware.org ), and a health care provider Web site ( www.fibromyalgiaHCP.org ), and publishes the only consumer magazine, Fibromyalgia AWARE. About Lilly Lilly, a leading innovation-driven corporation, is developing a growing
portfolio of first-in-class and best-in-class pharmaceutical products by
applying the latest research from its own worldwide laboratories and from
collaborations with eminent scientific organizations. Headquartered in
(1) Lawrence, et al. "Estimates of the Prevalence of Arthritis and Other
Rheumatic Conditions in (2) Leventhal, LJ. "Management of fibromyalgia." Annals of Internal Medicine 1999; 131: 850-858. (3) Wolfe, F, et al. "The prevalence and characteristics of fibromyalgia in the general population." Arthritis Rheum 1995; 38(1):19-28. (4) Wolfe, F, et al. "The American College of Rheumatology 1990 Criteria for the Classification of Fibromyalgia." Arthritis and Rheumatism 1990; 33:160-172. (5) National Institute of Arthritis and Musculoskeletal and Skin Diseases. Questions and answers about fibromyalgia. National Institute of Arthritis and Musculoskeletal and Skin Diseases Web site. (6) Arnold, L, et al. "Comorbidity of Fibromyalgia and Psychiatric
Disorders." Journal of Clinical Psychiatry 2006; 67:1219-1225.
www.niams.nih.gov/hi/topics/fibromyalgia/fibrofs.htm. Accessed (7) Arnold, L, et al. "Family Study of Fibromyalgia." Arthritis & Rheumatism 2004; 50(3): 944-952. (8) Bennett, Robert M., et al. "An internet survey of 2,596 people with
fibromyalgia." BMC Musculoskeletal Disorders. C-LLY (Logo: http://www.newscom.com/cgi-bin/prnh/20031219/LLYLOGO ) SOURCE Eli Lilly and Company
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